The journeys began...

Your life is perfect and completely normal with 2 healthy children, a little house you have made a home, two dogs, and great jobs. How could anyone ask for more? A lot of us can look at our lives right now and say the same but it all can quickly change, and you’re life be flipped upside down overnight.
The statistics show only 200 children in the entire US are diagnoses with DIPG (Pontine Gliomia) each year. How does it find your family?...
Meet Jackson. He is a very outgoing, energetic (if you can’t tell from the pictures), athletic, fun, loving 4 year old boy. He loves his 10 week old sister, whom he wanted to name Dora, loves going to preschool, and has a crazy love for baseball most 4 year old children could care less about. He amazes me how he can throw, catch, and hit a ball. Approximately a month ago Mom and Dad started noticing something was wrong when he developed some clumsiness. Most children are clumsy but not this athletic 4 year old. Doc thought he had an ear infection and prescribed an antibiotic. Becoming clumsier, falling, and nausea/vomiting caused the physicians to investigate a little further and sent Jackson for a CT scan of the head at the county hospital. There was defiantly something they were concerned about but new it was much too complicated for them to handle. He was sent to Riley immediately, at which in time Jackson thought he was going on vacation because Mom was packing his clothes. Without wasting time they rushed to one of the most known pediatric hospitals in the US where they thought, if anyone can give us good news it will be them.
This has been one stressful afternoon. The hope was surgery the next day, “if the tumor was operable.” After an MRI that seemed to take forever, in less than 24 hours after finding the mass, Jackson was given 12-16 months to live the life he should have more than 80 years to experience.
In less than forty eight hours Jackson’s left side was almost flaccid, he could not walk, use his left arm, or focus his left eye. The tumor was the size of a tennis ball and there was no way to remove it because of its location.
I am telling you this because I love this child. I love his mother, father, and all of my family whom is struggling greatly at this time. There is so much to think about. So much to comprehend and the last thing I want Jackson’s parents to worry about is finances, of which, at this time there are none, because they are not going to miss another second of this precious child’s life. They need to support him and we need to support them. I am not asking for you to donate money. Donating your prayers would be just as appreciated. The doctors are giving Jackson very little time but I know God has better plans. Medically there is nothing the doctors can do but the word terminal means NOTHING to God. Jackson is an amazing child and we know he is going to receive a miracle. In the mean time pray for peace, comfort, and words for Matt and Ashley when Jackson starts asking questions about his failing status. But, if you do have extra money, it would be used to support a very special family in their time of need. Merry Christmas to everyone reading and I will try and keep you updated on Jackson’s journey.